Update from December's cardiology appointment:
Jacob's heart is STABLE.
This is good news. The Aortic Root did grow, but it grew in proportion to how much Jacob's body grew from 2012-2013. Dr. Etheridge loved hearing that Jacob played soccer and that he is doing well in school. Because he is looking so good we are keeping yearly cardiology appointments, but are only doing echocardiograms every two years. She said that Primary Children's Hospital Cardiology team is trying to synchronize their appointment schedule with what is being recommended for all patients with Transposition of the Great Arteries that are post Arterial Switch Operation with no big complications. Kinda like the different Cardiology centers are trying to establish a standard of care that is consistent at all children's hospitals across the US.
We are hoping that next year Jacob will have grown bigger but that his Aortic Root will have not grown. Dr. E thinks that because of the scar tissue from the surgery that that will help contain the dilatation. We will add echos back sooner if there is any indication that we need a closer look at his heart. Also, there are future plans to add MRIs and Treadmill tests to give us an overall better look at his heart. I am so grateful for modern medicine and how well Jacob is doing!
We constantly pray for our Heart Friends and Angel families. There are a lot of families fighting each day for their sweet children. I have amazing friends that are missing their children every moment of everyday. Sending lots of love, hugs and prayers to those whose are struggling. xoxo